April 2017 Newsletter

Dear all,

Happy April!

ICED has seen a busy March. Islay Mactaggart was in Guatemala to disseminate the findings on the National Disability survey – conducted with CONADI, UNICEF and CBM. Read the report here. Meanwhile, Morgon Banks was in Nepal and Vietnam, to present the findings of the DFAT-funded project on the inclusion of people with disabilities in social protection programmes. The report will be available soon. Hannah Kuper presented at WHO-IDA on access to health care among people with disabilities. We have also launched the report on the “Uptake of Health and Rehabilitation Referrals for Children”, with fieldwork conducted in Malawi. Read the report here.

Last week, we finished the final session of our Study Unit on Global Disability and Health. Thank you to all who took part or taught. We are now working on developing a MOOC – which is an online course – on the same topic, to be launched later in 2017. Watch this space!

We are excited to welcome three new colleagues to ICED this month. Antony Duttine has been a doctoral student at LSHTM for the last three years, and is now joining as a research fellow working to develop a parent-based intervention for babies with Congenital Zika Syndrome in Brazil. Dr Shaffa Hameed is joining us to work on the impact evaluation of the Disability Allowance in the Maldives. Last, but not least, Jane Wilbur from Wateraid will be joining our team on a one year secondment, to investigate menstrual hygiene management among young women with disabilities in Nepal.

Best wishes,

Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

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Publications and Presentations

The results of the national survey of disability in Guatemala were released last month, led by Sarah Polack and Islay Mactaggart from the ICED group. This study included a national prevalence survey that showed overall that 10.2% of people in Guatemala had disabilities. In addition, in depth quantitative and qualitative studies were undertaken to gain a deeper understanding of the lives of people with disabilities in Guatemala. This study was conducted in collaboration with CONADI, CBM and UNICEF.

The results of the national survey of disability in Guatemala were released last month, led by Sarah Polack and Islay Mactaggart from the ICED group. Read the report here. This study included a national prevalence survey that showed overall that 10.2% of people in Guatemala had disabilities. In addition, in depth quantitative and qualitative studies were undertaken to gain a deeper understanding of the lives of people with disabilities in Guatemala. This study was conducted in collaboration with CONADI, CBM and UNICEF.

We have also launched the report on the “Uptake of Health and Rehabilitation Referrals for Children”, with fieldwork conducted in Malawi. Read the report here. This study combined a literature review on methods to increase uptake of health services among children, with qualitative and quantitative work with children with disabilities in Malawi to understand the challenges faced in accessing rehabilitation services. This study was led by Sarah Polack, Tess Bright and Hannah Kuper, and was funded by CBM.

Also last month, Andrew Bastawrous, Hannah Kuper and colleagues published one of the first papers on the incidence of diabetes in Africa, in the journal BMC Endocrine Disorders. This paper shows that diabetes is a major concern in Africa, leading to diabetic retinopathy and potentially other impairments. Read the report here.

Upcoming Seminars and Events at LSHTM

ICED Disability Seminar Series 2016 – 2017

Thursday 4th May, 5:30pm at LSHTM. “The Guatemala National Disability Survey – Findings and Implications”. Presentations by Sarah Polack and Islay Mactaggart, followed by a drinks reception.

Tuesday 30th May, 5:30 pm at LSHTM. “Social protection and disability”. Presentations by Morgon Banks and Stephen Kidd (Development Pathways), followed by a drinks reception.

The audio with power-point of past seminars are available on the ICED website

Other Events at LSHTM

Friday April 7, 12:30-1:30, Manson Lecture Theatre, LSHTM. The Centre for Global Mental Health (CGMH) has planned a series of events to mark this year’s World Heath Day theme titled, “Depression: Let’s Talk”, with the aim of increasing awareness and generating discussion on the topic of depression. It includes a seminar “Perspective on Depression”, with a talk by Islay Mactaggart from ICED. If you have any queries about the events, please contact or

Friday, April 21, 6 pm – 8:30 PM: A special seminar on “Researching Recovery: Voices from Uganda.”

Please register here in advance as space is limited.

The Centre for Global Mental Health is hosting a special seminar. This seminar will begin with a series of short videos about recovery in the Ugandan context, made by Ugandans with lived experience of mental illness who are involved in the Brain Gain II project. The discussion portion of the seminar will begin with a broad introduction to the recovery movement and international research on recovery. The introduction will be followed by a panel discussion with peer support workers and recovery college trainers involved in data collection for “MORE Brain Gain”. Researchers from “MORE Brain Gain” will then discuss the study design, early results, and ongoing challenges related to the evaluation of a recovery-oriented programme in a low-resource setting. The event will conclude with an open reception and showcase of Ugandan crafts made by peer support workers and recovery college trainers.

Work Experience Programme at ICED

We have launched our work experience programme for people with disabilities seeking experience in research. Please contact us if you would like to find out more about joining our team in this capacity.

Symposium on Global Disability in Hyderabad, November 2017

November 27/28, 2017 A date for your diaries – we will be working with the Public Health Foundation of India to host a Symposium on Global Disability in Hyderabad, India, in November 2017. The topics will be released soon. Please let us know if you would like to be involved in the planning or in attending.

Upcoming Conferences

  • Nordic Network on Disability Research 14th Research Conference. Örebro, Sweden, May 3-5, 2017. More info here.
  • Global Disability Innovation Summit. London, UK, 13-14 July, 2017. More Information Here
  • Second International Developmental Pediatrics Association Congress. Mumbai, India, 7-10 December 2017.                 More Information Here

We are making every effort to make all our research findings widely available, and have launched a Resource webpage where you can find our key reports and manuals. Resource Webpage

Have you seen this?

Anyone who saw the fabulous documentary “15 and learning to speak” will be keen to learn what happened to Patrick – a deaf boy in Uganda being taught sign language for the first time (original documentary Watch it Here. (25 minutes)  “Patrick speaks – 10 weeks on” highlights the power of sign language, and how great change that can be made in short space of time. Watch it Here (5 minutes).

One Last Thing …

Our very own Tess Bright is running the London Marathon for Sound Seekers. 26.2 miles! If you can support her in her fundraising, here is the Link

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