Getting to know cerebral palsy

Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy

Getting to know Cerebral Palsy

This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on the empowerment of parents and caregivers.

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” Parent, Sirajganj, Bangladesh

The training manual promotes working with groups. This provides an invaluable opportunity for parents to organise themselves and to consider strategies at the community level to address some of the issues which affect them and their child.

The manual is divided into 11 modules.

Front cover of the manual, "Getting to know cerebral palsy"

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© London School of Hygiene & Tropical Medicine, UK. This publication can be copied, reproduced or adapted to meet local need; any or all parts of this manual, including the illustrations, provided the parts reproduced are distributed free or at cost – not for profit.

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Find out more: join an online community “Working in the community with children with cerebral palsy”

“Working in the community with children with cerebral palsy” is a new online community that aims to support practitioners share their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each via email or through a community website.

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