Getting to know cerebral palsy
Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy
This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on the empowerment of parents and caregivers.
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” Parent, Sirajganj, Bangladesh
The training manual promotes working with groups. This provides an invaluable opportunity for parents to organise themselves and to consider strategies at the community level to address some of the issues which affect them and their child.
The manual is divided into 11 modules.
Download the manual
For our own monitoring and evaluation purposes, please provide some basic information before you download the manual. This information is optional, but it will help us in understanding how the manual is used:
Download high quality versions of each module:
- Cover & Module 0: Before You Begin! (PDF 4.4Mb)
- Module 1: Introduction PDF (1.2Mb)
- Module 2: Evaluating Your Child PDF (3.4Mb)
- Module 3: Positioning and Carrying (PDF 12.1Mb)
- Module 4: Communication PDF (2.5Mb)
- Module 5: Everyday Activities PDF (3.5Mb)
- Module 6: Feeding Your Child PDF (4.8Mb)
- Module 7: Play PDF (3.7Mb)
- Module 8: Disability in Your Local Community PDF (1.8Mb)
- Module 9: Running Your Own Parent Support Group PDF (1.2Mb)
- Module 10: Assistive Devices and Resources PDF (4.7Mb)
Download display materials to accompany the training materials. We recommend that you print these out and laminate them.
© London School of Hygiene & Tropical Medicine, UK. This publication can be copied, reproduced or adapted to meet local need; any or all parts of this manual, including the illustrations, provided the parts reproduced are distributed free or at cost – not for profit.
For more information about this publication please contact
Find out more: join an online community “Working in the community with children with cerebral palsy”
“Working in the community with children with cerebral palsy” is a new online community that aims to support practitioners share their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each via email or through a community website.