ICED Newsletter: May 2018

Dear All,

Last month we had the launch of our project with Help Age International on the inclusion of older people with disabilities in humanitarian crises. We had a full house, so thanks to all of you who came along and made the discussion so lively. If you missed the seminar, you can watch the recording here  and the report is available here. The report has also been featured in the Guardian.

We have seminars galore at the moment! Yesterday Jane Wilbur presented on her research about menstrual hygiene management for people with disabilities (see our Focus on section). Others coming up will explore measurement of hearing, how disability relates to clinical research, and the intersection of disability and NCDs. Details are given below – do come and join us! If you have missed them you can catch up online, and do let us know if you have a fabulous idea for a seminar.

Other than that, we are busy with fieldwork, with ongoing projects in the Maldives, Brazil, Tanzania, Rwanda, India, Nepal, Guatemala and beyond. This month our groups in Brazil for parents of children affected by Zika are finishing up. It’s been fabulous partnering with parents and therapists in Brazil – and we are really excited to start sharing our results. Watch this space!

Two more bits of news:

  • The next run of our online course on Global Health and Disability starts June 4th, and you can sign up here.
  • Sarah Polack and I are guest editing a special edition on “Disability and Global Health” for the International Journal of Environmental Research and Public Health. Submit by July 31 and find more information here.

Looking forward to contact in the month ahead.

Best wishes,

Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

We have reached more than 1700 followers on Twitter – please follow us @ICED_LSHTM.


Publications


Humanitarian crises are high on the international agenda, yet there is little data on the needs of people with disabilities, or what works to promote inclusion. We have been working with Help Age International to assess the inclusion of older people with disabilities in humanitarian crisis settings, through a systematic review, quantitative data analysis, and fieldwork in Ukraine and Tanzania. Read our report here.

Our publication in Plos One this month on livelihoods and disability, by Islay Mactaggart and others, shows that adults with disabilities were five times less likely to be working compared to age-sex matched controls in Cameroon and India. Amongst adults with disabilities, current age, marital status and disability type were key predictors of working. Inclusive programmes are therefore needed to provide adequate opportunities to participate in livelihood prospects for adults with disabilities in Cameroon and India, on an equal basis as others.

Our book chapter on Disability and healthcare in everyday life has just been published in the edited book on Disability, Normalcy and the Everyday. This chapter, written by Hannah Kuper, Goli Hashemi and Mary Wickenden, explores the links between health and disability, and the challenges and enablers to seeking healthcare for people with disabilities.

Also in Plos One last month, Tess Brights and colleagues published the results of a national survey in Rwanda showing the need for Primary Eye Care. Overall, one in three people were in need of Primary Eye Care, across the country.

LSHTM’s Sian White was part of a team publishing “A qualitative assessment of disability friendly water and sanitation facilities in primary schools, Rumphi, Malawi”. They found that no school had facilities that fully meet the needs of students with disabilities, but that it would cost little to bring existing infrastructure up to standard.


Focus on Menstrual Hygiene Management


Menstruation is often shrouded in taboos, perhaps never more so than for people with disabilities. Yet, supporting the management of menstruation is critical for ensuring the inclusion of women, including in schools, and to avoid negative outcomes like forced contraception and even sterilization. Little work has been done to consider menstrual hygiene management among people with disabilities, so we are delighted to be partnering with Wateraid on this topic. The research, led by Jane Wilbur, consists of:

  • Conducting a systematic review of menstrual hygiene management for people with disabilities
  • Undertaking participatory fieldwork with young women with disabilities in Nepal to gain a better understanding of their needs around menstruation
  • Working with partners to develop and test an intervention to support the menstrual hygiene management of young women with intellectual impairments in Nepal.

Jane presented her research on May 3, and if you missed the seminar you can catch it soon online.


Upcoming Seminars and Events at LSHTM


Upcoming seminars:

  • May 10: LSHTM 12:45-13:45: Disability and Clinical Research – what are the links? Hannah Kuper. Room LG8
  • May 10: LSHTM 13:00-14:00: Developing a rapid method to assess the prevalence and causes of hearing loss in population-based surveys. Tess Bright. Room LG6.
  • June 4: LSHTM 13:00-14:00: Non communicable diseases and Disability. Hannah Kuper

You can find all our previous seminars (including the audio recordings and slides) here.


Work Experience Programme at ICED


We have launched our work experience programme for people with disabilities seeking experience in research. Please contact us if you would like to find out more about joining our team in this capacity: .


Upcoming Conferences


 


Other things of interest


 

We are making every effort to make all our research findings widely available, and have launched a Resource Webpage where you can find our key reports and manuals.


Have you seen this?


Or rather, have you heard this?

Two radio features by Tom Shakespeare this month on the BBC.

 

 

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