ICED Newsletter: September 2017

Participatory research training, Maldives, papers and more!

Dear all,

The new academic year has started! Our pencils are sharpened and we are getting ready for new adventures. I hope that you had a wonderful summer.

Last month we held our first research skills training workshop for young people with disabilities in Nepal. It was a fabulous event, that we hope to repeat. Read more about it below in our “Focus on…” section.  We also completed a national survey of disability in the Maldives, as part of our impact evaluation of the Disability Allowance programme. We screened over 6500 people in just 2 months. Watch this space for the results…. The parent-support groups in Brazil working with carers of children affected by Zika are now set up and underway, with early feedback very positive.

Congratulations to ICED doctoral student Antony Duttine who has been appointed as the Advisor, disabilities and rehabilitation at Pan American Health Organization. We are also welcoming new staff this month – as Dr Sarah Wallace will be joining us for 6 months to work on impact evaluations.

We also have news on seminars, publications and more – listed below.

Best wishes,

Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

We have reached more than 1350 followers on Twitter – please follow us @ICED_LSHTM.

Publications and Presentations

Morgon Banks, Maria Zuurmond, Hannah Kuper and colleagues published an article on Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe” in Plos One this month. Through qualitative interviews with stakeholders, large gaps were revealed in knowledge about HIV-related disability and in referrals to rehabilitation. Read the paper here

Joerg Weber has recently completed his PhD studies at LSHTM, focusing on participatory evaluation of Community Based Rehabilitation. As part of this project, he has recently published two papers, together with Sarah Polack and other colleagues. In “Towards a ‘mind map’ for evaluative thinking in Community Based Rehabilitation: reflections and learning”, published in Disability in the Global South, he reports on a series of workshops held in Jamaica with CBR workers and other stakeholders. The paper concludes with the call for critical, engaged and bottom-up approaches that move away from control-oriented approaches in CBR towards more experimental and adaptive problem and process-oriented approaches, that embrace complexity and that are consistently responsive to an ever changing context. Read it here

The second paper, “An Online Survey on Identification of Evaluation Capacity, Needs and Current Practice of Programme Evaluation in Community-based Rehabilitation”, was published in Disability, CBR and Inclusive Development. This paper reports the findings of an online survey conducted among CBR managers in Africa, Asia and Latin America around experience of conducting evaluations within their programmes, including barriers to conducting these, and the extent to which people with disabilities and their families have been included in the process. Read it here

Focus on:

Training Workshop: Introduction to Research Skills: 28th August- 1st September.

We held our first research skills training workshop for young people with disabilities in Nepal from. A joint collaboration with Wateraid, CBM, and Plan-International Nepal. All participants will be working on one of two ICED research projects, ‘Strengthening the voices of adolescents with disabilities in Nepal’ or ‘Disabling menstrual barriers’.

It was an amazing week with learning for everyone on how we could make the training as inclusive as possible for participants with a wide range of impairments. The Plan-Nepal inclusion manager emphasised the importance of this shift in research focus:

“This research approach is paramount.  Although doing research by involving persons with disabilities may be bit harder and bit more expensive due to barriers, it could be instrumental to empower people, and help bring out factual information. It is a milestone in our implementation of the UNCRPD and our legislation in Nepal.”  

Upcoming Seminars and Events at LSHTM

  • September 20, 9-11.30 a.m, Rose Room, Keppel St, LG6&7. Centre for Global Mental Health is hosting a cross-faculty symposium. This will feature talks from researchers across disciplines on how mental health issues intersect with other domains such as NCDs and chronic illness; infectious disease; gender and gender-based violence; humanitarian emergencies; sexual health; maternal health; alcohol and substance misuse; disability; and early child development.  Click hereto register your attendance. With any queries, please contact
  • September 21, 11:00-12:30, Manson Lecture Theatre, LSHTM. Launch of the new Centre for Global Chronic Conditions. This session will present the new LSHTM Centre for Global Chronic Conditions and its future plans, it will showcase existing multi-disciplinary work at the School on chronic conditions, including with the International Centre for Evidence in Disability. You can register to this event here: Register for the event here
  • October 16, 5:30-6:30, John Snow Lecture Theatre, LSHTM. Hannah Kuper will be presenting on “Global Disability: What can we learn from Zika?” as part of the Global Health Lecture Series at LSHTM.
  • You can find audio recordings with power-point of past seminars on our website

Other seminars of interest

  • Wednesday 20th September, 12:00 – 13:00 in the June Lloyd Room/PUW 4, Ground floor, UCL Institute of Child Health, 30 Guilford Street, WC1N 1EH: Addressing the global mental health treatment gap in cities Speaker: Chris Underhill, founder of BasicNeeds and co-lead of mhNOW – the first comprehensive platform to address the global mental health gap at scale. Register your attendance here
  • November 8, 6:30-8:00 p.m, Sheikh Zayed Theatre, New Academic Building 54 Lincoln’s Inn Fields London, WC2A 3LJ Politics of Mental Health”. Featuring a panel of speakers. More information here: Find more information here

Work Experience Programme at ICED

We have launched our work experience programme for people with disabilities seeking experience in research. Please contact us if you would like to find out more about joining our team in this capacity: .

Upcoming Conferences

  • Coalition for Global Hearing Health, University of Miami, USA. 12-14 October 2017. Read here
  • Second International Developmental Pediatrics Association Congress. Mumbai, India, 7-10 December 2017. Read Here
  • 2018 Australasian Academy of Cerebral Palsy and Developmental Medicine conference, Auckland, New Zeeland 21-24 March, 2018. Read Here This conference aims to have increased emphasis on leadership development in this area in LMIC, with scholarships available.

We are making every effort to make all our research findings widely available, and have launched a Resource Webpage where you can find our key reports and manuals. Resource Website Here

Have you seen this?

This video reflecting on the experiences of people with disabilities in Hurricane Katrina is relevant today as Hurricane Irma and Harvey strike. Watch Here (15 minutes).

Also – check out the app launched by CBM last month – Humanitarian Hands On Tool – to help people with disabilities access life-saving services during emergencies. View App Here

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