Getting to Know Cerebral Palsy
Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy
This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” – Parent, Sirajganj, Bangladesh
The manual is available to download for free from this page in English, Spanish and French. A Chichewa (Malawi) version is also ready for sharing and the manual is being translated in a variety of other languages through the online community “Working in the community with children with cerebral palsy“.
A background paper on the quality of life of caregivers of children with disabilities in Bangladesh has also been published by the ICED team titled: “Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods“
Download “Getting to know cerebral palsy” in English, Spanish, French and Arabic
For our own monitoring and evaluation purposes, please provide some basic information before you download the manual. This information is optional, but it will help us understand how the manual is used.
Download “Getting to know cerebral palsy” in English
Download high quality versions of each module:
- Cover & Module 0: Before You Begin! (PDF 4.4Mb)
- Module 1: Introduction PDF (1.2Mb)
- Module 2: Evaluating Your Child PDF (3.4Mb)
- Module 3: Positioning and Carrying (PDF 12.1Mb)
- Module 4: Communication PDF (2.5Mb)
- Module 5: Everyday Activities PDF (3.5Mb)
- Module 6: Feeding Your Child PDF (4.8Mb)
- Module 7: Play PDF (3.7Mb)
- Module 8: Disability in Your Local Community PDF (1.8Mb)
- Module 9: Running Your Own Parent Support Group PDF (1.2Mb)
- Module 10: Assistive Devices and Resources PDF (4.7Mb)
Download display materials to accompany the training materials. We recommend that you print these out and laminate them.
Download “Familiarizándonos con la Parálisis Cerebral” in Spanish
Download display materials:
Download “Apprendre a connaitre la Paralysie Cerebrale” in French
Download high quality versions of each module:
- Apprendre a connaitre la paralysie cerenrale (759Kb)
- Module 0: Avant de Commencer (938Kb)
- Module 1: Introduction (740Kb)
- Module 2: Evalyer votre enfant (1.13Mb)
- Module 3: Positionnement et porter (1.77Mb)
- Module 4: Communication (1.20Mb)
- Module 5: Activités journalières (1.35Mb)
- Module 6: Nourrir votre enfant (1.32Mb)
- Module 7: Jouer (1.05Mb)
- Module 8: Le handicap dans votre communauté (666Kb)
- Module 9: Diriger votre propre groupe des parents (644Kb)
- Module 10: Dispositifs d’assistance et ressources (1.14Mb)
French translations provided by Light for the World.
Download “Getting to know cerebral palsy” in Arabic
- Cover (Arabic PDF 3Mb)
- Module 0: Before You Begin! (Arabic PDF 0.5Mb)
- Module 1: Introduction (Arabic PDF 0.4Mb)
- Module 2: Evaluating Your Child (Arabic PDF 1Mb)
- Module 3: Positioning and Carrying (Arabic PDF 1Mb)
- Module 4: Communication (Arabic PDF 1Mb)
- Module 5: Everyday Activities (Arabic PDF 1Mb)
- Module 6: Feeding Your Child (Arabic PDF 1Mb)
- Module 7: Play (Arabic PDF .7Mb)
- Module 8: Disability in Your Local Community (Arabic PDF (.5Mb)
- Module 9: Running Your Own Parent Support Group (Arabic PDF (.5Mb)
- Module 10: Assistive Devices and Resources (Arabic PDF .9Mb)
Arabic translations provided by International Committee of the Red Cross.
© London School of Hygiene & Tropical Medicine, UK. This publication can be copied, reproduced or adapted to meet local need; any or all parts of this manual, including the illustrations, provided the parts reproduced are distributed free or at cost – not for profit.
For more information about this publication please contact
Find out more: join an online community “Working in the community with children with cerebral palsy”
“Working in the community with children with cerebral palsy” is a new online community that aims to support practitioners share their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each via email or through a community website.